Another Update

Since Chelsea is approaching her 18th birthday in August, this seemed to be an appropriate time for another update. She continues to thrive in ways I could never have imagined. She went to a school dance with a young man; she looked so beautiful in her dress. She has learned to speak very clearly and her behavior is nearly perfect. She looks healthy and happy, and I know she is loved. We got together with our extended family and held a swim party for her and then out for dinner. We all had a great time and got lots of Chelsea-hugs. I miss her every day, but I know that she is so much better off with her foster mom. Just because I love her with all my heart does not mean that I am capable of giving her the best care, I clearly was not. There are times I feel guilty for turning her over to her foster mom, but then I just think about how well she is doing. She is so much better off now, and no matter how much I miss her, I have to remember that I did it for her best interest. Bottom line - not everyone has what it takes to raise such a special child, and I readily admit I don't have what it takes to do it right. Some folks (who obviously didn't have a real high opinion of me) had indicated that they thought my life would continue to be miserable even if I didn't have Chelsea, I guess they were insinuating that being a tired, depressed, bitter person was just my nature and Chelsea was my excuse. I can admit that the first year after she left was pretty bad. I was still depressed, my marriage still in trouble, and my finances in an even deeper hole than before. Add to that the guilt I felt for having failed to be strong enough to take care of Chelsea, and it was a pretty rough road that I wasn't sure I would come back from. Over time, however, life has gotten better. I've adjusted to life without her, I have been in counseling since she left, and I have started to live like a normal middle aged woman. It just took awhile to find out what that even meant. I have just gotten to the point where I feel okay about running to the store late at night, there's still that little tiny bit of feeling like I can't do that. I never experienced any burst of a sudden sense freedom, just a laboriously slow return to something close to normal. Finally, we are happy, and Chelsea is happy. And after all, wasn't that the point?

Update

I know it's been forever since I've written anything, but I know there are still a few of you subscribed, so I thought I'd provide you with an update. Chelsea is doing wonderful in her new home. In a few months she has gotten to experience more than she would in a lifetime of living with me. She has a new wardrobe. She has been to the beach in South Carolina. She was present at the birth of her new cousin. She has learned to cook. She has started an exercise class with her foster mom. She is finally having the life she so richly deserves. As for me, all the health issues I was having while she was still here turned out to be cancer and I am so glad she was not here during my treatment and surgery. All is well and I have been given a clean bill of health, but I don't know how on earth I would have taken care of her during all of that. Once again, I believe I have made the best decision for Chelsea.

Halloween Pumpkin Pictures

I thought you guys might enjoy pics of Chelsea picking out a pumpkin to decorate (no carving here!).

Chelsea's Homecoming

Well, on Tuesday evening, Chelsea came home without much fanfare. My son dropped her off at around 7:30 pm and she had school the next day. She sat in her room watching a favorite movie for about an hour, and then asked me what time her dad was coming back. When I explained to her that she was back with us now, that her time with dad had been just a little vacation, she smiled and jumped under the covers. She was asleep in five minutes. I had no idea that he had not explained anything to her. She had not had a bath, and he didn't bring her clothes until 10:30 that night, clean but thrown unfolded in a box. Not my idea of preparing for the first day of school. That's just not how I live. I have everything ready the night before, baths over with, clothing laid out, etc. I like a nice, calm, organized morning. To make matters worse, I overslept the next morning, so it turned into a mad dash to get ready and get out the door. Chelsea took it all in stride, I, on the other hand, was a very unhappy camper.

For those who don't know

I often get get comments pointing out how depressing my blog is at times. I am quite certain that many find it to be a "downer" when perhaps they were looking for something uplifting. I thought maybe this would be a good time to bring to light the reason we have Chelsea in the first place, for those who don't already know. Perhaps knowing how we came to be Chelsea's guardians will explain why our experience is so different from those who are parenting a Down's child by choice. It is a rather long story, but I will summarize it.

On July 13, 1999, Chelsea's baby sister was murdered by her mother and step-father. After much emotional trauma, dealings with Child Protective Services, and two murder trials, my son was given custody of Chelsea by the courts. He was a newlywed at the time, and the combination of the murder itself and having a disabled child placed in their lives with little warning caused their marriage to disintegrate and they divorced. My son tried valiantly to care for Chelsea on his own, but amidst his grief over his murdered child and his divorce, did not cope well. Chelsea was not thriving and learning as she had been before his wife left. In order to protect Chelsea and give her some kind of chance in the world, my husband and I agreed to take her until he could get his life in order. It has been years now, and he still cannot seem to cope with her. I understand this, because I can barely do so myself.

I had only been married about a year when Chelsea came, having been happy and enjoying my life for the first time in years. Being middle-aged and suddenly have a disabled child to care for does not lend itself to happiness. I had always looked forward to that time in life when my boys were on their own and I could once again get to know myself as something other than someones caregiver. One event, on July 13, has had such a ripple effect in all of our lives, but I cannot let go of the thought that Bethanie's murder not only ripped a part of my heart out forever, it also cost me my happiness. If you really take the time to think of the emotional dynamic that takes place every day as a result of these events, you may have a better understanding of why my blog is not all about the wonders and joys of a Down Syndrome child. I will love protect Chelsea until my last breath, but I can't help but mourn the lost years of my life, just when I had started to enjoy them. For more information about Bethanie and her murderers, see my blog "Never Another Child" http://neveranotherchild.blogspot.com/ Thanks for reading.

A solution to the problem...I hope

I think we may have happened upon the solution for the summertime blues. We have told my son (Chelsea's dad) that he WILL keep his daughter through the summer months. He came and picked her up last night. It will be much better for her than sitting around all day with us old folks. She has two siblings to play with, a great big sturdy dog, and a fenced yard. No more sitting in front of the television all day in the summer. It is definitely what is best for her. My son lives just a few blocks away, so I am comfortable that I can drop in any time I feel the need to check on her. The thing is, I feel sad about the whole thing. Sad because I had to force her dad to take her for a few weeks. Sad that she seems to be the child no one wants, other than me, and I can't manage taking care of her with the other responsibilities in my life, all of which are necessary. I wonder what will become of her in the future. Will she be one of those people sitting in an institution, grasping for any little morsel of attention? I will do my best to prevent that from happening, but I am only one person, and one person with a ton of responsibility. It's just all so sad.

I really hate summer

Yes, this is one of my dark, depressing posts. Sorry, but this is where I vent, and hopefully get some encouragement. School is out for the summer, which means 24/7 Chelsea. It also means my hubby is too depressed to do anything around the house, which in turn means I work all day and then come home to clean up and take care of things, then start my data entry job. Every year I have trudged through the summer, but this one is different. I am sick. I am struggling to get through every day at work, and hoping I won't lose my job, but it is so hard to keep going when I feel like I do. I have to try to stay awake to do the online work at night in spite of meds that make me sleepy. Then there is the stress of wondering how this will all turn out. The doctor suspects MS, and if that is true, what will become of Chelsea? How ironic to have sacrificed so much of my life to keep her safe, only to have to send her somewhere else. I don't know how much longer I can keep this up, folks, I really don't.